Read PDF Imperfect Perfection: A Cystic Fibrosis Journey

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We are all in this together! Thank you Vertex for believing in us. Finding out your first born has a disease is so many things… Hard to accept Lifechanging Stressful Sad and on and on. At 23 I was like most first time expectant mothers.

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When we received confirmation that she had this thing called Cystic Fibrosis CF I was actually relieved. I have always been the person who would rather know the worst so I can work the problem. Having it be your child is another new level and will teach you who you are and just how strong you can be. For most of our daughters life, our biggest struggle was just keeping weight on her.

Which ironically is hard when the rest of the world is trying to loose weight. I have always told her to look for the positives. While we have always fought to keep things as normal as possible, these kids are anything but normal. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.


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Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Your email address will not be published. Learning about self-compassion I first learned about the importance of self-compassion in my work counseling clients for 30 years. Author Details. Kim Fredrickson. She lives in Northern CA, with her husband of 40 years and has 2 adult children.

Kim was diagnosed with Pulmonary Fibrosis in May , as a rare complication from chemotherapy and radiation for breast cancer. Kim believes that learning to advocate for yourself with kindness and compassion, just as you would for a good friend, makes this difficult journey a little easier.

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In her patient column, she offers practical ideas to help us care for ourselves, fight for what we need, and process our many-layered emotions. Print This Page. Leave a Comment Cancel reply Your email address will not be published. Pin It on Pinterest. We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it.

I may be more anxious than I have ever been in my life, but I am also more happy than I have ever been.

Tam's Double Lung Transplant Journey

Because you, my little lady, are infectious. Your giggle, your personality, your attitude — you are truly magnetic.

Imperfect Perfection: A Cystic Fibrosis Journey

I know parents are supposed to remind themselves that their children are their children, not their friends. You are my very best friend on this planet. Everything in my life is better in your presence. I love everything about you and I always will. Posted in: Uncategorized. You are commenting using your WordPress. You are commenting using your Google account.

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Imperfect Perfection: A Cystic Fibrosis Journey eBook: Jonathan Sacker: buyrealliagramsimp.ml: Kindle Store

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As soon as they lifted you, I began quaking again.